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Monday, December 1, 2008

Another update on Cloee's breathing

Here's a post I never posted and just realized it. Looks like it's from Dec. 1st. I'm not gonna change the date to today.

I meant to put all these posts on Cloee's blog but due to my spaciness they ended up here. I may move them to their proper place someday...
Anyhow, this is just an update on Cloee. We saw the pulmonologist last Monday, but it wasn't the regular doc it was one of his partners and she was from China or somewhere and it was hard to understand her, on top of that I had Cade with me who wanted constant attention and Cloee was burning with a fever and ready for a nap. It was disastrous to say the least. I basically didn't receive good news. Cloee will probably require daily (possibly multiple times each day) breathing treatments for a LONG time. They won't even really talk about whether or not she will 'grow out of it' until she is around 5 years old. The doctor made comments about allergies and to watch out for things that trigger her breathing problems- but she showed me some marks on Cloee's back (she has extremely sensitive skin- it gets red just by a small touch) and she showed me something around her lips and said that it was caused by allergies. I dunno what she was talking about but maybe one day I will know. For now I worry about the things I can really do something about. She told me, which isn't new news, that Cloee's lungs are all 'diseased'. There is a name for what Cloee has but I can't think of it- actually she has two things- bronchial pulmonary disease I think is one of them and I can't remember the other one (I should have written it down but with the chaos I just didn't do it).
Each day is a new day. Last week there were days when she was having treatments every 30 minutes for hours. Yesterday she did really well with breathing- only needing a few, but today she had quite a bit of trouble.

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